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This is a blog about Parkinson’s disease written by Darcy Blake. I’m a woman who has Parkinson’s Disease. I was diagnosed with PD in 2008, I’ve had two DBS surgeries, and I’ve recently retired as the director of communications for a college.
I helped organize Parkinson’s Women Support, a support group for women with Parkinson’s disease in the greater Bay Area. Check out our Facebook page https://www.facebook.com/parkinsonswomensupport/ I started writing this blog as a representative for the group in 2013, but I realized that it made more sense to blog as one person, so as of 2017, I’m blogging solo! I’m still very much involved in Parkinson’s Women Support, and doing my part to help it grow.
The intent of this site is not to prescribe medical advice about the diagnosis, treatment or other medical aspects of Parkinson’s Disease but to provide support and encouragement for women living with this condition. I hope that the research and information I’ve described will help you with your understanding and management of the disease.

 

10 thoughts on “About

  1. I am so excited about this website. I’d like to attend the July meeting. I was diagnosed with YOPD 2009. I am a teacher so I have the summer off and would like to meet other YOPD’s.

  2. I am very happy to find this website. Last year, I met dr Grasy in Parkinsin institute in Sunnyvale. I diagnosed PD 4 years ago. I am Mongolian.

  3. Catherine, Email Susan who sets up our luncheons. Usually, luncheons are on the third Tuesday of every month on Palo Alto, but sometimes the date changes. February may be one of those months. We’d love to meet you!

  4. I joined the support group in June of 2012 at the suggestion of Dr. Brandabur. I was diagnosed in May of 2012. Living in Merced, CA at the time, the two hour drive was worth it to be among amazing women who were going about their normal lives. We moved to Louisville, CO (near Boulder) in March 2013 to be near our daughter who now has a 3 week old baby. I miss the group and hope to attend at least one luncheon a year. There are several support groups in this area, but not a women’s group. My neurologist, Dr. Giroux has suggested I start a group.
    Hoping to see several of you in Scottsdale, AZ this May.

  5. We’ve just started our own group here in the DC area about 6 months ago. Many of us belong to larger support groups with men and caregivers but our ‘affected women only’ fills a special need. What do you think has fueled your group’s success since 2008?

    • Keeping our mission clear and focused has helped us. OUR MISSION is to offer moral support, encouragement and camaraderie for women who are Parkinson’s Disease patients. We don’t offer medical help and we don’t book guest speakers because that help is provided elsewhere. We meet to enrich the lives of other women like ourselves with friendship and as our mission states, moral support, encouragement and camaraderie. As a result, our meetings are alway fun and positive, and not bogged down in program planning.

  6. Darcy–I am a woman with PD. I just had DBS.
    I am involved with a promising stem cell research clinical trial specifically for Parkinson’s disease out of Scripps in San Diego.
    I would appreciate the opportunity to communicate with you directly about both.
    Could you tell send me an email or phone number?
    Thanks!

  7. Hi,
    I’ve read about this program, and it is a big undertaking requiring loads of research. Hats off to them. My commitment to PD is to communicate about it and to be an advocate for women with PD, and a spokesperson for Parkinson’s Women Support, so I don’t fundraise or focus on one aspect of research. Not enough time! If you’d like to write something about your efforts on their behalf, I could possibly do a blog on it. Our members don’t fundraise as a group. I don’t want to publicize my personal email, but if you leave your name, I can message with you on Facebook. Thanks!

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