In November 2019, the California Department of Public Health (CDPH) issued a report on the California Parkinson’s Disease Registry (CPDR). CPDR is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson’s disease.
Under the California Health and Safety Code (HSC) 103860-103870, starting July 1, 2018, healthcare providers including hospitals, facilities, physicians and surgeons or other health care providers diagnosing or providing treatment to Parkinson’s disease patients are required to report each case of Parkinson’s disease to CDPH.
The report titled Accomplishments and Updates, September 2019 shows a glimpse of what the registry has accomplished during the program’s three-quarters of a year in existence. As of September 30, 2019, CPDR has received 175,669 total records from 497 reporting entities. Of those entities, CPDR is receiving reports from some of the largest health systems in California including Sutter Health, Scripps Health, and UC San Diego, Stanford Health and Kaiser Permanente (South). As CPDR is working with large health systems to increase data capture, Kaiser Permanente (North) and Dignity Health have also begun to automatically report to CPDR.
In October, Governor Gavin Newsom signed AB 715, the legislation to extend the California Parkinson’s Disease Registry (CPDR). The Governor’s signature keeps the registry in place through January 2021. The registry is a critical data collection effort that could transform Parkinson’s disease treatment, and could one day be pivotal for finding a cure. The year 2020 is a short but indispensable step forward for Parkinson’s disease research.
For more information please contact: California Parkinson’s Disease Registry Chronic Disease Surveillance and Research Branch 1631 Alhambra Boulevard, Sacramento, CA 95816 https://www.cdph.ca.gov/Programs/CCDPHP/DCDIC/CDSRB/Pages/California-Parkinson%27s-Disease-Registry.aspx | (916) 731-2500