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Editor’s Note: Our friend Elaine Sulzberger attended the Women’s March in Washington D.C. She shared some of her thoughts on the march, and a few photos from that day. We follow with a suggestion on how to continue the momentum.

1-20170121_154147The Women’s March in Washington DC

“In my entire life, I have never experienced anything like the women’s march in Washington D.C.

-We took the Metro to the march and it was packed with people. All of us felt a bit queasy due to the crowded atmosphere. The train was filled with all sorts of pink hats worn by men, women and children.

-The tone of the walk varied from angry to hopeful. Songs were sung throughout the day. Some made us laugh and others made us very sad.

-Police presence was minimal in most locations. However, at Trump’s hotel, lots of police and multiple barriers prevented entry to the hotel. Protests picked up in front of the hotel.

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-The signage was fabulous and so creative.
Main protest themes included

• Women’s Rights • Global Warming
• Black lives Matter • Putin and Trump
• Gay Rights
•  Science is Real

-The participant headcount grew so large that the walk split up and the city was basically shutdown for the day.  Everywhere you looked there was a sea of people. I only saw one violent encounter all day between a Trump supporter and a protestor.

-As previously mentioned, people involved in the march were friendly, kind and cared about one another.7-mg_0171 It would be great if the sense of community is maintained. We need to voice our concerns to our congressional leaders so the momentum continues.”

Best, Elaine

How to Continue Momentum

Editor’s note: Elaine brings up an important point. Our congressional leaders need to hear our concerns so that the importance of health care for Parkinson’s disease is recognized – especially if any part of the Affordable Care Act (ACA) is repealed.

As his first order of business the new president signed an executive order to repeal the ACA. Here’s what this means… even if you are safely covered behind employer-provided insurance, the protections set forth in the ACA, apply to you too. And if those protections are repealed along with the rest (or any part) of the program, you will also be affected.

4-img_0181That means you may be trapped in a job, because your pre-existing condition may mean you will not qualify for new insurance offered by another employer, and the cost of private insurance would be prohibitive. If your employer shuts down, lays you off, or even changes insurers, well, you are out of luck.

Health Care for All Includes Those With Pre-Existing Conditions like Parkinson’s Disease

The Senate GOP voted this week that they would not require an eventual ACA replacement to protect against discrimination for pre-existing conditions, which was the standard before the ACA.

It means that if you have an illness, you may not be able to afford all the care you need, because you may hit lifetime or annual caps.

The Senate GOP just voted that an eventual ACA replacement program would not be required to prohibit lifetime insurance caps. These provisions of the ACA affect everyone in this country, not just those without insurance through their employers.

Call Your Congress Daily

If you are not okay with these changes, call your representatives and let them know what’s important to you. Nothing has been set in stone yet, but our legislators have shown us a map of what they plan to do if constituents don’t make their voices heard loud and clear.
 Call 202-225-3121 and speak to a human being who will connect you with your congress people when you give them your zip code. Tell them that health care needs to be available for all people including those of us with pre-existing conditions like Parkinson’s disease.


About Parkinson’s Women Support: The mission of Parkinson’s Women Support is to offer moral support, encouragement and camaraderie for women who are Parkinson’s disease patients. Check out our Facebook page: https://www.facebook.com/parkinsonswomen

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