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2015-review-final

During the course of 2015, Parkinson’s Women Support (PWS) spent months coordinating a roster of exercise classes for Moving Day Silicon Valley, a walk event presented by the National Parkinson Foundation. Committee member Ann Boylan described the experience as “joy, cheer, celebration, friendships old and new, teamwork, kinship, new community, validation, hope and going the distance.”

We raised over $84,000 for the Foundation. As a result, a portion of that money has been awarded to local PD organizations for exercise and workshops in the Bay Area.

Elaine Sulzberger graciously hosted Moving Day planning meetings. PWS friends volunteered at a walk event presented by the Parkinson’s Institute. Women helped out at the UCSF 8th Annual Patient and Caregiver Conference. Others volunteered to be a part of Michael J Fox Foundation research studies.

In addition to chairing Moving Day, I was in a film about Circuit Therapeutics, a research lab working with Optogenetics. Our friend Nancy Stohn added a PD patient-friendly touch to the new Stanford Neuroscience Building. Susan Foster worked with a leadership committee to plan the Women and PD Conference that three of us—Susan, Ann Boylan and I—attended in New Jersey. Susan Speicher hosted get-togethers and surveyed members, spurring them to host our monthly luncheons.

We wrote about our members’ use of Rytary™, a new medication for Parkinson’s disease that was approved in January 2015. We followed up that blog with one on our use of the Neupro patch.

The Parkinson’s Women Support video was entered in the World Parkinson Congress Video Competition 2016. You’ll be asked to vote next spring when it’s time for the public vote (the submission deadline is May 1, 2016)!

Stories That Touched Me

When I look through the blogs of 2015, four stories rise to the top because they touched my heart in a special way.

One story is about the absolute thrill of having created the Parkinson’s Pioneers commemoration at Moving Day. We were able shine a spotlight on local doctors and researchers in the Bay Area who are dedicating their lives to neuroscience research and treatment of Parkinson’s disease (PD).

The second story is that of my personal loss when my mother Patricia Ryser who had Parkinson’s disease died a week before the Moving Day Silicon Valley event. She was 87 and she had suffered with Parkinson’s disease for 30 years.

The third story is about our representation at the Women and PD Conference presented by the Parkinson Disease Foundation. Going forward, a group of 25 women from across the country will be advocates for the unique needs of women with pd.

The fourth story is that women in our group have created a new group in San Joaquin, Amador & Stanislaus Counties. This means more women will benefit from the friendship and camaraderie of a support group.

These four stories represent the reality of Parkinson’s disease–gratitude, sadness and loss, and hope for the future.

As we gear up for 2016, we’re grateful for the friendship of people with PD everywhere. May the New Year bring you improved health and happiness!

Parkinson’s Women Support Blogs of 2015

JANUARY

Aiyana Lent Lends a Hand to Moving Day Silicon Valley
https://parkinsonswomen.com/2014/12/10/aiyana-lent-lends-a-hand-to-moving-day-silicon-valley/

Mammo Bling for DBS
https://parkinsonswomen.com/2015/01/03/mammo-bling-for-dbs/

Just Released: Optogenetics Lighting Up the Brain!
https://parkinsonswomen.com/2015/01/08/just-released-optogenetics-lighting-up-the-brain/

Under the Big Tents on Moving Day
https://parkinsonswomen.com/2015/01/12/under-the-big-tents-on-moving-day/

Nancy Stohn Adds Parkinson’s Patient-Friendly Touch to Stanford Neuroscience Building
https://parkinsonswomen.com/2015/01/13/nancy-stohn-adds-parkinsons-patient-friendly-touch-to-stanford-neuroscience-building/

No More Nights Counting Sheep to Sleep with Sleep Medicine & Neurology
https://parkinsonswomen.com/2015/01/14/no-more-nights-counting-sheep-to-sleep-with-sleep-medicine-neurology/

100 Happy Days Until Moving Day
https://parkinsonswomen.com/2015/01/14/100-happy-days-until-moving-day/

Learn to Hula at Moving Day
https://parkinsonswomen.com/2015/01/20/learn-to-hula-at-moving-day/

Rock Steady Boxing SF Punches Parkinson’s on Moving Day
https://parkinsonswomen.com/2015/01/22/rock-steady-boxing-sf-punches-parkinsons/

What’s in a Smile for a Person With Parkinson’s?
https://parkinsonswomen.com/2015/01/25/whats-in-a-smile-for-a-person-with-parkinsons/

Down the Road with Parkinson’s Disease
https://parkinsonswomen.com/2015/01/27/down-the-road-with-parkinsons/

How I Became Moving Day® Silicon Valley Walk Chair
https://parkinsonswomen.com/2015/01/30/how-i-became-moving-day-silicon-valley-walk-chair/

Little Devils Walk in Moving Day® Silicon Valley
https://parkinsonswomen.com/2015/01/31/little-devils-walk-in-moving-day-silicon-valley/

Wendy Stephens Zumba Will Launch Celebration of Movement 
https://parkinsonswomen.com/2015/01/31/wendy-stephens-zumba-will-launch-celebration-of-movement/

Moving Day® Is Not About Luggage at National Parkinson Foundation 
https://parkinsonswomen.com/2015/01/31/moving-day-is-not-about-luggage-at-national-parkinson-foundation/

FEBRUARY

Facebook Community Soars for Parkinson’s Women Support
https://parkinsonswomen.com/2015/02/11/facebook-community-soars-for-parkinsons-women-support/

Speech Therapist Megan DePuy Helps People With Parkinson’s Disease Find an “Ah Ha” Moment
https://parkinsonswomen.com/2015/02/12/speech-therapist-megan-depuy-helps-people-with-parkinsons-disease-find-an-ah-ha-moment/

Andy Butler Spreads the Word About Parkinson’s Disease
https://parkinsonswomen.com/2015/02/14/andy-butler-spreads-the-word-about-parkinsons-disease/

Special Hotel Rate at the San Jose Marriott for Moving Day® Silicon Valley
https://parkinsonswomen.com/2015/02/16/special-hotel-rate-at-the-san-jose-marriott-for-moving-day-silicon-valley/

Tweeting for Parkinson’s Disease
https://parkinsonswomen.com/2015/02/20/tweeting-for-parkinsons-disease/

POLE Walking for Balance and Maintaining Mobility
https://parkinsonswomen.com/2015/02/24/pole-walking-for-balance-and-maintaining-mobility/

MARCH

Stephanie Herman Controls Fitness With Dance and Pilates
https://parkinsonswomen.com/2015/03/01/stephanie-herman-controls-fitness-with-dance-and-pilates/

Have Your Ducks in a Row at Moving Day® Silicon Valley
https://parkinsonswomen.com/2015/03/03/have-your-ducks-in-a-row-at-moving-day-silicon-valley/

Praise for Bay Area Parkinson’s Pioneers
https://parkinsonswomen.com/2015/03/17/praise-for-bay-area-parkinsons-pioneers/

How to Get the Most Out of Moving Day® Silicon Valley
https://parkinsonswomen.com/2015/03/18/how-to-get-the-most-out-of-moving-day-silicon-valley/

Synaptic Physical Therapy Targets Parkinson’s Disease
https://parkinsonswomen.com/2015/03/19/synaptic-physical-therapy-targets-parkinsons-disease/

APRIL

Update: Praise for Bay Area Parkinson’s Pioneers
https://parkinsonswomen.com/2015/04/03/update-praise-for-bay-area-parkinsons-pioneers/

Imagining Moving Day Silicon Valley
https://parkinsonswomen.com/2015/04/05/imagining-moving-day-silicon-valley/

FAQs for Moving Day® Silicon Valley
https://parkinsonswomen.com/2015/04/11/faqs-for-moving-day-silicon-valley/

Capturing Grace Presented by SF Dance Film Festival and Stanford University
https://parkinsonswomen.com/2015/04/18/capturing-grace-presented-by-sf-dance-film-festival-and-stanford-university/

In Memoriam: Patricia Ryser 1928–2015
https://parkinsonswomen.com/2015/04/19/in-memoriam-patricia-ryser-1928-2015/

Our Moving Day Silicon Valley Debut
https://parkinsonswomen.com/2015/04/25/our-moving-day-silicon-valley-debut/

MAY

Hats Off to Parkinson’s Pioneers at Moving Day 2015
https://parkinsonswomen.com/2015/05/03/hats-off-to-parkinsons-pioneers-at-moving-day-2015/

The Parthenon & Wonders of the World
https://parkinsonswomen.com/2015/05/30/the-parthenon-and-wonders-of-the-world/

JUNE

The Story Behind the Film, Moving Day Silicon Valley 2015
https://parkinsonswomen.com/2015/06/16/the-story-behind-the-film-moving-day-silicon-valley-2015/

Tweeting on Speech and Swallowing
https://parkinsonswomen.com/2015/06/20/tweeting-on-speech-and-swallowing-michaeljfox-org-foxpdchat/

JULY

Two Years of DBS
https://parkinsonswomen.com/2015/07/18/two-years-of-dbs/

AUGUST

EMI, DBS & Electronics
https://parkinsonswomen.com/2015/08/08/emi-dbs-electronics/

Henderson & Dhall on DBS
https://parkinsonswomen.com/2015/08/27/henderson-dhall-on-dbs/

SEPTEMBER

Barb Zimmer and YODP
https://parkinsonswomen.com/2015/09/02/barb-zimmer-and-yopd/

The Best Medicine is Exercise for Susan Speicher
https://parkinsonswomen.com/2015/09/07/the-best-medicine-is-exercise-for-susan-speicher/

New Attitude for Nancy Stohn with Acupuncture
https://parkinsonswomen.com/2015/09/10/nancy_stohn_acupuncture/

Parkinson’s Women Support to Attend Women and PD Conference
https://parkinsonswomen.com/2015/09/13/parkinsonss-women-support-to-attend-women-and-pd-conference/

Lisa and Team Garvey Walk Over YOPD
https://parkinsonswomen.com/2015/09/14/lisa-and-team-garvey-walk-over-yopd/

On the Crooked Road With Cindy DeLuz
https://parkinsonswomen.com/2015/09/23/on-the-crooked-road-with-cindy-deluz/

PDF Women and PD Conference Wrap-up
https://parkinsonswomen.com/2015/09/27/pdf-women-and-pd-conference-wrap-up/

OCTOBER

Karen Garrison’s Plan for Parkinson’s
https://parkinsonswomen.com/2015/10/04/karen-garrisons-plan-for-parkinsons/

Meet Professional Parkinson’s Patient Barbara Rosenthal
https://parkinsonswomen.com/2015/10/05/meet-professional-parkinsons-patient-barbara-rosenthal/

Langston and Palfreman Brainstorm on Parkinson’s
https://parkinsonswomen.com/2015/10/08/langston-and-palfreman-brainstorm-on-parkinsons/

South African Wilma Du Toit Shares Her PD Experience
https://parkinsonswomen.com/2015/10/12/south-african-wilma-du-toit-shares-her-pd-experience/

Parkinson’s Women Support Rally
https://parkinsonswomen.com/2015/10/21/parkinsons-women-support-rally/

Darcy Blake: On Turning 65 with Parkinson’s Disease
https://parkinsonswomen.com/2015/10/23/darcy-blake-on-turning-65-with-parkinsons-disease/

Shout-out to Women with PD in San Joaquin, Amador, Stanislaus counties
https://parkinsonswomen.com/2015/10/26/shoutout-to-women-with-pd-in-san-joaquin-amador-stanislaus-counties/

NOVEMBER

One Thousand Likes for Parkinson’s Women Support
https://parkinsonswomen.com/2015/11/04/one-thousand-likes-for-parkinsons-women-support/

Sister Keep Calm and Carry On
https://parkinsonswomen.com/2015/11/24/sister-keep-calm-and-carry-on/

11 Women With PD Try Rytary™
https://parkinsonswomen.com/2015/11/28/11-women-with-pd-try-rytary/

Booking Soon for 4th World Parkinson Congress
https://parkinsonswomen.com/2015/11/29/booking-soon-for-4th-world-parkinson-congress/

DECEMBER

11 Women with PD Try Neupro Patch
https://parkinsonswomen.com/2015/12/05/11-women-with-pd-try-neupro-patch/

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