January 27, 205 | by Darcy Blake | Parkinson’s Women Support occasionally gets requests like one from Jenette:
“I am a 55 year old woman. I have been diagnosed with Parkinson disease. I am on medication but I still have slight tremors. I could not find a support group in Stoneville, North Carolina. My question is what do I have to expect down the road. This is very hard for me to deal with and I don’t understand it. I have researched it, but I still can’t make sense of what its saying. Or just don’t understand the information. I just want to know what is going to happen to me in the long run, can anyone help me or let me know about their experiences.”
This request tugs at our heartstrings because those of us with Parkinson’s Disease know how frightening it is to receive a diagnosis of Parkinson’s Disease. It is a bit of an unknown because each of us has an assortment of physical problems that aren’t the same as others who have the same disease. It is a potluck affair. Some of us have tremors, some of us have balance issues, gait or swallowing issues. The list goes on.
Finding a support group in North Carolina is highly recommended. Camaraderie makes all the difference, as any of our group will attest. Try these organizations and call them up for some on-the-spot empathy and help to navigate you to a good group.
Parkinson Association of the Carolinas
Phone: 704-248-3722 Toll-free: 866-903-PARK (7275)
Duke University Medical Center, Movement Disorders Center
Phone: (919) 668-7600
Toll Free: (888) 275-3853
A lot of how you end up depends on you, your attitude, your luck and your effort. Parkinson’s Disease is not a diagnosis that your life is over.
Leslie Davidson, a fellow PD friend says, “If someone offered to take away the PD but also all the astonishingly beautiful growth and connections I have made because of it, I would have a very difficult choice to make.” See the blog, The Full Blown Ten http://parkinsonswomen.com/2014/02/12/the-full-blown-ten/
My 87 year old mom has had the disease for over 25 years. She has a small tremor on her left side, and she is confined to a wheelchair, having never exercised regularly. She has a tough time speaking, and swallowing. She still has her great sense of humor and wisdom about life.
On the other hand, just last week, I had lunch with a woman with PD who is in her mid-eighties and has a small tremor but doesn’t take medications, and looks like a woman in her sixties.
That’s the part of life we can’t predict. We can jump in and do something incredible good for life, even if it is as small as being nice to a bird outside the window. We know you can do it, and we’ll celebrate our movement together! Welcome to our group!
Check out the other blogs at www.parkinsonswomen.com
About Parkinson’s Women Support The mission of Parkinson’s Women Support is to offer moral support, encouragement and camaraderie for women who are Parkinson’s Disease patients. Check out our Facebook page: https://www.facebook.com/parkinsonswomen