pws-3-20-12cREVIEW 2012  Our PD news reporting blossomed:

• 23and Me announced their first patent!

•The Parkinson’s Institute was awarded a five-year $6.7M Research Leadership Award from the California Institute of Regenerative Medicine (CIRM).

• At one of our luncheons, we zoned in on how to get a good golf swing when your hand starts to wobble half-way through. Winning solution: sing a phrase of a song to yourself with an elongated word such as “I love you BAY-ay-bee” You hit the ball on BAY! Your wobble will vanish in order to match the beat of the song lyric and you might find you’ve got a hole-in-one!

• The Michael J Fox Foundation published news about a treatment for PD through a partnership with Bristol Myers, Squibb

• Dr. Rob White from UC Berkeley worked with Professor Mark D’Esposito on a paid research study on cognition at the University of California, Berkeley. He recruited individuals with mild or moderate Parkinson’s Disease for a functional MRI experiment. Contact: berkeleyneuroresearch@gmail.com

• A low-cost, anonymous, three-minute phone call to 1-857-284-8035 helped The Parkinson’s Voice Initiative with their goal to record 10,000 voices across the world to develop technology to test for symptoms using voice recordings alone. They claimed a a 98.6% detection accuracy for PD just from digital audio signals of sustained phonations. NPR did an article, “Say Ahhh…” on them in July 2012. http://www.parkinsonsvoice.org/

• San Francisco-based chef Chris Cosentino of Incanto restaurant, was crowned winner of Top Chef Masters Season 4: WE LOVE YOU! Chris won $282,000 on the TV show and donated it all to the Michael J. Fox Foundation for Parkinson’s Research. What a guy! His restaurant is at 1550 Church Street, SW corner of Church @ Duncan St (bet 27th and 28th Streets) Noe Valley, SF 415.641.4500. Consider some meals there to give him a high-5 for his efforts! http://blogs.sfweekly.com/foodie/2012/10/chris_cosentino_on_his_top_che.php

• If only pigs could talk….. A new treatment that injects cells from a pig’s brain into the brains of people with Parkinson’s disease is one step closer to being used. Pigs to cure PD? Who’d a thunk it!

• If you ever wanted to be a movie angel, the year 2012 was your chance. Dave Iverson, KQED radio/PBS film journalist was working on a film about dancers with PD and he needed some funding help to finish it. An incredible project and worthy cause not to miss.

• A story published in a Washington Post blog about an artist who drew during his own DBS. So amazing. Talk about an “ah ha” moment!

• Our group had lunch with leading LARK2 researcher Dr. Jeremy Nichols at the Parkinson’s Institute. We had a seat at his table. Awesome, charming fellow

•  New compounds developed by Professor Richard B. Silverman and D. James Surmeier work by slamming the door on an unwelcome and destructive guest — calcium. The compounds target and shut a relatively rare membrane protein that allows calcium to flood into dopamine neurons. New approach to treating PD? Read more at: http://scienceblog.com/57340/parkinsons-breakthrough-could-slow-disease-progression/

• Now, not only do we lack dopamine, but it may be we lack GABA as well. This was a fascinating report on how mice are helping Harvard docs….  http://psychcentral.com/news/2012/10/26/harvard-mouse-study-may-help-explain-parkinsons-puzzle/46724.html

• Medicare is taking a softer stand on covering physical therapy. This news was a big deal for those of us with PD. http://www.nytimes.com/2012/10/23/us/politics/settlement-eases-rules-for-some-medicare-patients.html

• How tempting this is. Could it be true? A little ultrasound and your tremor is gone? http://www.nbc29.com/story/19981092/uva-parkinson-treatment

•Our sickly PD protein looks like it needs a makeover and highlights  :http://www.businessweek.com/news/2012-11-15/damaged-protein-reveals-parkinson-s-destructive-course

• Did you tell your story to Michael J. Fox yet? It is worth quite a worthy bundle to them. http://www.brandchannel.com/home/post/2012/11/30/Michael-J-Fox-Facebook-Story-Campaign-113012.aspxC

• Stem cells are pointing to productive results in our friends, the monkeys. friendshttp://www.latimes.com/news/science/sciencenow/la-sci-sn-parkinsons-stem-cells-20121203,0,5101424.story

• Monkeys, mice and other brave critters are helping with the cure for PD, so it is no surprise that a mad cow or two have joined the mix. A mighty mooo to you!  http://www.foxnews.com/health/2012/12/04/mad-cow-disease-may-hold-clues-to-other-neurological-disorders/

• Box your way backwards in your PD? That’s what they say…http://currentincarmel.com/rock-steady-raises-90000-to-slow-parkinsons

• So it isn’t the prettiest photo we’ve ever had, but now the docs can see the path our brains are taking: http://www.nytimes.com/2012/11/27/health/imaging-shows-progressive-damage-by-parkinsons.html?_r=0

• Had good luck with acupuncture for PD? Here’s the latest on it. http://www.healthcmi.com/index.php/acupuncturist-news-online/662-acupuncturecslowsparkinsonsdiseasenewdiscoverygb34

• We can’t finish the year without congratulating Dr. Langston and commemorating Robert A. Pritzker for their contribution and leadership in PD research. It takes a team to find a cure and their combined efforts are building the foundation for finding a cure for generations of PD patients to come. Our deepest thanks and gratitude to two individuals who have made a profound difference in the world. http://www.thepi.org/news/2012/04/05/news-articles/dr.-j.-william-langston-awarded-2012-robert-a.-pritzker-prize/
This is a great article on leading PD doctor, Dr. Langston.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s